Awaiting Aislinn

Thursday, May 05, 2011

Playing catch up

My poor blog has been so neglected. I keep starting updating it but then the chipmunk wakes up from her nap or I'm so beat at nite to put two words together. We are heading camping this coming weekend , so I am hoping for a bit of rest ( who am I fooling, my days of rest are long gone)!We have Aislinn 2 months tomorrow and she has come so far ( in our eyes but not the neurologist eyes) Our appointment was for Monday, we arrived a half hour earlier, filled out our paperwork, Aislinn was weighted & measured (she hasn't gained any weight or grew since we got her) and were in the exam room for 10am (our appointment time) & told Dr D would be with us in a few minutes.. My sister Jamie came with me for the appointment and we kept Aislinn entertained for the next hour as we waited, Dr D came walking in @ 11:02 & was done with us by 11:20 (it was the 1st time she had seen Aislinn) She threw allot of medical words at me (thank god Jamie was writing everything down) asked a few questions and that was it. We have another appointment in August & Aislinn is scheduled for an sedated EEG in June. From pass experience with neurologist I know they are very.......... clinical. She (the DR) is tops in her field but I wasn't thrilled with her, time will tell as to whether or not we stay with her or change Drs.
Aislinn had to have blood taken. We took her to the hospital lab since we knew a lot of blood was going to be drawn for all the test Dr Nick & Dr Silverman wanted down. It took 4 of us to hold her down while they found the vein & she screamed but once we let up on her she was fine watching what the tech was doing. They took 14 vials of blood from her & afterwards we went to breakfast. She also had a sedated MRI (which was more traumatic on me then on her) & the results came back good. . At her last appointment with Dr Nick she still hadn't gained any weight or grew. When he came into the room, he asked how she was doing with her walking. I took Aislinn off the table & let her walk for him. Dr Nick is please with her progress so far, after we get her levels back from the lab we will begin shots which will be the Friday the 13th! Aislinn has also started getting evaluated for services. So far we have been told she might benefit from a full day program to help her catch up. I not to keen on that idea but want to do what is best for her. When all the evals have been done (speech, OT, PT & a psychologist) we will then meet with the school district and go from there.

As always be good & be Safe

| posted by Unknown at 9:52 AM

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This is an account of our lifes as we head down the path of life towards our first child. An invisible red thread connects those who are destined to meet, regardless of time, place, or circumstance. The thread may stretch or tangle, but will never break." --An ancient Chinese belief

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DTC 4/20/07...LID4/26/07. ...Referral 5/27/10~Waiting for our TA...Aislinn Day is March 6,2011